I have a happy, cuddly and beautiful two year old son. Rapidly approaching three actually.
For a while now we've felt something was not quite right. His speech has not developed as you would expect. He has probably 50 or so words, and will speak in sentences but 95% of it is gobbledygook. He can parrot new words, but doesn't tend to use them. The words he does use often take a while to decipher, which frustrates him a lot when he wants something.
He is the third child. I know full well speech delay is not unusual in kids with older siblings (who do everything for them). I know it's not all that uncommon in boys either. I know.
But something just doesn't feel right.
I took him for his hearing test this morning. We were convinced that the answer would lie there, given his non-response to lots of aural cues.
He had an epic meltdown when the tester showed him the earphones. I'm talking hair pulling, headbanging, screaming and hitting. We decided not to use the.
I engaged him in a game and as the tones were played he was rewarded for his response by this (kinda creepy) dancing elephant thingy in a glass box. Yes, it was as weird as it sounds. He responded perfectly to all the tones, even ones I found nearly impossible to hear.
Then she needed to put a thingo in his ear to check for middle ear damage. Cue meltdown again. He does not tolerate people touching his ears. Not us, not anyone. In the end I had to pin him against me and squeeze him still. He was freaking out. It was not fun.
But it showed everything to be normal there too.
So he's been referred for speech pathology (9 month waiting list. Awesome). And then the guy came in and suggested if he's still having these meltdowns and struggling with language when he's three we should consider a Paed referral to assess for an austism spectrum disorder, as he displays a few markers.
This isn't the first time it's been suggested that he may have high functioning Aspergers or similar. But usually I'm hearing it from people who have no clues.
I really feel that that's not it to be honest. I've worked with (older) Aspie kids and I see my boy's emotional responsiveness and other behaviours and it doesn't sit quite right with me. But I do feel like something is amiss. Not just the speech, but the meltdowns which are relatively new, increasing in frequency and intensity, and nothing like his 'normal' toddler tantrums. The best analogy I can think of is that if you think of a tantrum as a nightmare, these meltdowns are like night terrors. It's like I'm not even there as I try to hold or soothe him. He looks straight through me. And then it ends as abruptly as it started, like he's just woken up. But they happen when he's awake, and seemingly for no reason.
Don't know. I don't want to trouble trouble. I'd love it if he just clicked one day soon and started speaking and grew out of the meltdowns and it was all just one of those developmental things. And maybe he will. I can only hope. But in the meantime I now have more questions than I started with.
Parenting. Again, never boring.
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Ohai! I'm Kate. I say stuff.















A friend of my has a daughter who is 17 or 18 now, and she has a an auditory processing issue - her hearing is fine, but she can't always process what she hears. Maybe it is something like that? One day when we have coffee, remind me to remind you what life was like with my oldest at this time (night terror like meltdown where he zoned out for an hour at a time of screaming - he did this 5 or 6 times a day at it's peak), but there is more to it than what I've said here...
ReplyDeleteI don't know if any of the people I know are diagnosed with aspergers, maybe they are, but my experience with autism is one pretty disabled kid, with a lot going on. Pretty much I have nfi.
ReplyDeleteFrom what I know of him to what is listed on the simplest of aspergers stuff I've read, doesn't really overlap a lot .. like O wants things done a certain way a lot of the time and certainly has a narrow range of interest in the cars, I don't know if T's "rituals" and interest in the phone is more ubiquitous than O's are? At your house the other day he came up and said a sentence sounding phrase to O using his name, without crowding his personal space or acting socially unusual, they certainly have played in the way you'd expect two 2yo boys to play together a lot ... he has just never struck me as socially different, or anxious, or uber clingy or detached.
The wait for the speech pathologist makes my blood boil! I wonder what the waits would be like for the paed etc?
Oh Kate, always stressful when we feel something isn't quite right with one of our kids. And you are the mama of 4, so you know when something isn't quite right.
ReplyDeleteMy middle DD has had extreme meltdowns her whole life, peaking around 7yrs, still has them at times now at 11yrs, and I felt really stressed trying to work out if something wasn't *right*. I just felt that nobody took it seriously because she seemed "perfect" in public. Totally different to your situation, but just wanting to empathise that it is really hard/sad/stressful when something isn't quite "right", and you can't seem to get to the bottom of it.
I hope his ears aren't "sore" and that is why he doesn't want anyone to go near them.
Also, my nephew has always had speech problems, which are much better now (he is almost 14yrs). It seems to be an audio processing problem too because he struggles to read and write as well, and seems to not pick up the instructions from the teacher first time around, but needs them clearly explained specifically to him to help him get started with the work (amongst other things). His speech is still not perfect, but much better, and he is a perfectly normal boy, but still, I guess my point is that there may be other things that cause problems besides hearing or autism spectrum.
Whatever, I just hope you get to the bottom of it soon. The wait for speech pathology makes me SOOOOO angry for you! 9 Months is a LONG time when you are only that young! Argh!!! ((hugs))
Gosh, so hard :(
ReplyDeleteNothing I can say that hasn't been said already but know I'm thinking of you xoxo
I'm sorry that I have nothing to offer you except lots of love and sympathy. Hard times :(
ReplyDeleteBig hugs. xxx
*hugs*
ReplyDeleteIt's so hard with children, scared that something is wrong. I'm SO glad you are trusting your intuition, it's the most important asset as a mother.
To be honest, I'd be getting a referral to a paed now, especially if the waiting list is going to be stupidly long like the speech therapist.
I hope the answers come soon.
xxx
it is so hard when we just know something isn't quite right but can't put our finger on it. I would go to a paed asap and read up as much as you can on ASD's. No two children are alike and no two days are alike. Having a child with autism I have met many many others and all are different.
ReplyDeleteSif would love to chat with you sometime about your experiences. A friend (thankyou M!) sent me a link to some info on sensory processing disorder and it is ringing some bells.
ReplyDeleteLeah my last class I taught I had two Aspie kids... one you wouldn't even know aside from the very odd meltdown. The other I needed training to work with. But I REALLY don't feel that T is on the spectrum... I agree re his social/emotional engagement. And his 'obsessions' seem perfectly age appropriate... if anything he has nothing on how J was. Keep remembering J 'doing a line' and giggling LOL.
And the wait. IKR? Fn idiotic.
Jen I feel for your girl. It must be so hard to have those reactions and no control over them :( Meltdowns are so hard! Thanks for your thoughts.
Shae & Deb thankyou both <3
Ames I'd come to the same conclusion and will sort out a GP appt for later this week. Will probably be months til we can get a Paed appt anyways and much easier to cancel one we don't need than try and get one in the first place!
Kelli thankyou, am doing lots of reading.
The hard thing for me is that I don't want to be some wanky overreactive Muchhausens-esque Mum freaking out over nothing. And a lot of the time he is fine (aside from the speech thing) and I'm sure I'm being totally OTT about it. But then when he does lose it it's traumatic and horrible. And well out of the realms of what I've experienced with the other kids, and extremely out of character for him. And my big boy was an EPIC tantrummer, I know that of which I speak lol.
Thanks guys I really appreciate the thoughts and feedback.
So sad it isn't as simple as we hoped :(
ReplyDeleteBut all will be fine! It's one undefined glitch in an otherwise perfect development, what a blessing the health and function in the other 98% of him is! You're on a good wicket with all 4 of them, obviously the issues are worth your attention and resolve to find answers but don't forget how many millions of things their bodies and minds do perfectly every day. It's wonderful!
I know a few speech paths (we do crossover work in lessons when my kids are having speech development or laryngeal issues), I even know a great one in Melb... I can check with her to see if you have speedier options or if she has any
resources or exercises/games to recommend if you like. Or I can get some advice and try a few things out next time I'm over. Up to you tho xx love you xx
Kate my friend has been down your road. It's a long one and takes lots of determination. Because her son is still undiagnosed (turning 8 next month) she has followed a broad approach which has included Gymbaroo, Occ Therapy, speech therapy, school readiness program, tomatis, chripractor, paediatrician and podiatrist.
ReplyDeleteShe and I were sure that the big multi discipline testing would show auditory processing but both times it has not been conclusive!
Finally, three weeks ago, he speech therapist was replaced. The new girl spent two hours reassessing him and is certain it is an auditory processing disorder. My friend and I have both felt this from very early on. She is taking a new approach and already he has shown some improvement!
Anyway, I hope you have more luck. Don't let the autism comments worry you. It is constant for my friend and she has always disagreed (so have the professionals). You know your child, you need to follow as many leads that you can.
Good luck.
Hi Kate
ReplyDeleteFor what its worth I thought I might add a bit of little advice. Certainly I would ask your GP for a referral to Paed. You will probably find the wait much less than the public speech pathologist. Specific language delay( and there are various types) is quite common and in no relation to Autism. You have done the right thing to check out his hearing. The melt downs could be his struggling with communication at his age of development. If after assessment by the Paed you could then ask your GP to put your son on a team care arrangement that would subsidize costs through medicare to see a private SP. Unfortunately this is only 5 sessions per calender year, but it is a start.
Getting the ball rolling now will help when he enters preschool.
I hope this helps.
You are doing an amazing job.
xo jill
Hi Kate, I'm enjoying reading your blogs :) lots of insight into raising 4 kids!! Can I recommend Dr Anne Smith, she is a paed at Sunbury private, we have been seeing her for just on 10 years with our eldest and I cannot fault her!!
ReplyDeleteGood luck and I truly hope you get answers soon! xKelly
Hi Kate, sorry to hear about your son's struggles. My eldest is high functioning autism (clear cut diagnosis) but we are having concerns about our 5 y.o daughter. She has speech issues (we believe she has an auditory processing disorder) and sensory issues (chews on everything) and is struggling with nightmares at night and separation from me when going to school. Teacher and speech therapist thinks she has Aspie qualities but I don't agree. On the road to testing at the moment and hoping we can get to the bottom of whatever she has to help her at school and with life in general. Hoping you can get a resolution soon too!
ReplyDelete